Comprehensive Family Support

Participate in Research on Peer Support!

Posted on Nov 1, 2016

Our contacts in Britain are doing some very important research on the value of peer-to-peer support for NICU parents, and are looking for people around the world who do peer support to participate.  Read below, and if this applies to you, please join in!  Thank you for supporting NICU parents!! “If you provide/work as a peer counsellor/supporter in a neonatal context, please contact Gill Thomson (GThomson@uclan.ac.uk) to take part in an international study (funded by the British Academy/Leverhulme) to explore how peer counsellor/supporters are recruited, trained and supported.”...

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We’ve been traveling around…and imagining…

Posted on Oct 1, 2016

We have more great news to share!  We just got back from the Vermont Oxford (VON) Annual Quality Congress in Chicago where we presented, along with Dr. Howard Cohen, Medical Director of the NICU at Salem Hospital in Salem, OR, our vision for Neonatal Intensive Parenting Units.  Wow!  What a concept!  Where families are the focus, not just the baby.  Where every attempt is made to avoid parent-baby separation.  Where parents stay with the baby as much as they can, with their own bed in baby’s room.  Where parents are involved in every element of care (that is medically feasible) from the...

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August Update: An exciting new resource and a correction of another…

Posted on Aug 13, 2016

We are excited to introduce a new resource to the site, a document entitled Starting and Sustaining a Peer Support Program for NICU Parents.  This very complete “how to” manual was originally developed by members of the National Perinatal Association in 2001, and was just updated by current members of the NPA, with some help from our friends in the Preemie Parent support community (special thanks to Lisa Grubbs of NICU Helping Hands, Kelli Kelley of Hand to Hold, Leelee Klein of Tiny Miracles Foundation, and Heather McKinnis of Graham’s Foundation for sharing resources with...

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What’s new this summer?

Posted on Jul 10, 2016

We are so excited at the interest and positive reception that the Recommendations for Psychosocial Support for NICU Parents have gotten!  Members of the workgroup that developed the recommendations have now delivered 23 presentations across the country with more scheduled, including an international presentation at the Marcé Society for Perinatal Mental Health in Melbourne, Australia in September.  Members have presented before audiences of NICU nurses, nurse practitioners, neonatologists, obstetricians, occupational therapists, social workers, psychologists, and NICU parents.  A poster we...

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New Endorsements and an Award Given

Posted on May 5, 2016

We are excited to continue to collect endorsements for the Recommendations.  There are now a total of 32 professional and parent support organizations that have recognized the importance of this work to both NICU parents and NICU staff.  Please check our Supporting Organizations page to see who has signed on!  The value of having more organizations expressing support for the Recommendations is that everyone in each of those organizations can take the Recommendations back to their individual NICUs.  The most recent organization to align with us is Project Sweet Peas, a parent support...

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