Workgroup Participants

100px organizationsIndividual members of the Workgroup on Psychosocial Support of NICU Parents, convened by the National Perinatal Association, are shown, as well as professional and parent support organizations that participated.




Sue L. Hall, MD, MSW, FAAP


St. John’s Regional Medical Center

Oxnard, CA

Michael T. Hynan, PhD

Emeritus Professor of Psychology

University of Wisconsin-Milwaukee

Milwaukee, WI


Participants in the Workgroup


Lisa Baker, PhD, LCSW, PIP

Associate Professor of Social Work

University of Alabama, Birmingham, AL

Amy Baughcum, PhD

Pediatric Psychologist

Assistant Clinical Professor of Pediatrics

Ohio State University School of Medicine

Nationwide Children’s Hospital

Columbus, OH

Jennifer Beatty, MSW

Program Director

Hand to Hold

Austin, TX

Joy Browne, PhD, PCNS-BC, IMH-E(IV)

Clinical Professor of Pediatrics and Psychiatry

University of Colorado Anschutz Medical Campus and

The Children’s Hospital

Aurora, CO

Tawna Burton

March of Dimes Family Support Program Coordinator

Intermountain Medical Center

Salt Lake City, UT

Rebecca Chuffo-Siewert, DNP, ARNP, NNP-BC, FAANP

Neonatal Nurse Practitioner

Department of Neonatology, University of Iowa Children’s Hospital

College of Nursing, University of Iowa

Iowa City, IA

Robert Cicco, MD

Neonatologist and Associate Director of NICU

West Penn Hospital

Pittsburgh, PA

Jenene Woods Craig, PhD, MBA, OTR/L

Assistant Professor of Occupational Therapy

Brenau University, College of Health Sciences

Gainesville, GA

JaNeen Cross, PhD, MSW, MBA, LCSW, ACSW

Assistant Professor of Social Work

Widener University

Chester, PA

Barbara DeLoian, PhD, RN, CPNP

Pediatric Nurse Practitioner

Special Care/Special Kids, Inc.

Castle Pines, CO

Jaime DeMott

Parent Volunteer

Graham’s Foundation

Charlotte, MI

Pamela A. Geller, PhD

Department of Psychology

Department of Obstetrics & Gynecology, Drexel University College of Medicine

Associate Professor of Psychology, Obstetrics/Gynecology and Public Health

Drexel University

Philadelphia, PA

Cris Glick, MD


Mississippi Lactation Services

Jackson, MS

Andrea Schwartz Goodman, MSW, MPH

Formerly Maternal and Child Health Director

National Healthy Mothers, Healthy Babies Coalition

Washington, DC

Erika Goyer

Family Advocate

National Perinatal Association

Education Director

Hand to Hold

Austin, TX

Lisa Grubbs

Founder and President

NICU Helping Hands

Fort Worth, TX

Nick Hall

Founder and President

Graham’s Foundation

Waterville, OH

Becky Hatfield

Parent Support Specialist, Parent to Parent Program

University of Utah Hospital

Salt Lake City, UT

Amanda Hedin


Eden’s Garden

Blaine, MN

Pec Indman, EdD, MFT

Certified Trainer for Postpartum Support International

San Jose, CA

Carole Kenner, PhD, RNC-NIC, NNP, FAAN

Dean and Professor of the School of Nursing, Health and Exercise Science

The College of New Jersey

Ewing, NJ

Steve Lassen, PhD

Associate Professor of Pediatrics

University of Kansas Medical Center

Kansas City, KS

Kristy Love

Director of Operations

National Perinatal Association

NICUPS Family Support

St. Louis, MO

Sue Ludwig, BS, OTR/L

Neonatal Occupational Therapist

University of Cincinnati Medical Center

Cincinnati, OH

Laura B. Martin, MMEd

Director of Parent Communication and Engagement

Graham’s Foundation

Waterville, OH

MaryLou Martin, MSN, RNC

Clinical Nurse Specialist/NurseEducator

McLeod Regional Medical Center

Florence, SC

Heather McKinnis

Director, Preemie Parent Mentor Program

Graham’s Foundation

Waterville, OH

Cheryl Milford, EdS

Psychologist in Private Practice

Huntington Beach, CA

Kyle Mounts, MD

Wisconsin Association for Perinatal Care/Perinatal Foundation

Milwaukee, WI

Raja Nandyal, MD

Associate Professor of Pediatrics

The Children’s Hospital at Oklahoma University Health Sciences Center

Oklahoma City, OK

Chavis A. Patterson, PhD

Director of Psychosocial Services, Division of Neonatology

The Children’s Hospital of Philadelphia

Assistant Professor of Clinical Psychology in Psychiatry

Department of Psychiatry, Perelman School of Medicine at the University of Pennsylvania

Philadelphia, PA

Raylene Phillips, MD, MA, FAAP, FABM, IBCLC

Assistant Professor of Pediatrics/Neonatology

Loma Linda University School of Medicine

Loma Linda University Children’s Hospital

Loma Linda, CA

Carrie Piazza-Waggoner, PhD

Associate Professor of Behavioral Medicine and Clinical Psychology

University of Cincinnati

Cincinnati Children’s Hospital Medical Center

Cincinnati, OH

Rachel Ponzek, BSN, RN

Neonatal Intensive Care Unit

Children’s Hospital of Philadelphia

Philadelphia, PA

Laney Poye

Director of Community Relations

Preeclampsia Foundation

Melbourne, FL

Janet Press, RNC, BSN, CT

Perinatal Bereavement Services Coordinator

Crouse Hospital

Syracuse, NY

Isabel Purdy, PhD, RN, CPNP, NNP, CNS

Associate Clinical Professor of Pediatrics, Division of Neonatology

David Geffen School of Medicine at UCLA

Los Angeles, CA

Lisa Rafel

Musician, singer, composer

Founder of Resonant Sounds

Oakland, CA

Donna Ryan, DNP, RN

Assistant Professor in Nurse Education Program

Elmira College

Elmira, New York

Anne Santa-Donato, MSN, RNC

Director, Obstetric Programs

Association of Women’s Health, Obstetric and Neonatal Nurses (AWHONN)

Washington, DC

Sage Saxton, PsyD

Clinical Associate Professor of Pediatrics

Child Development & Rehabilitation Center

Oregon Health & Science University

Portland, OR

Jennifer Schum, RN, CPN

Regional Director of NICU Family Support-West Region

March of Dimes

Dallas, TX

Lisa Segre, PhD

Associate Professor of Nursing, College of Nursing and Department of Psychology

University of Iowa

Iowa City, IA

Nancy Green Selix, CNM, DNP

Assistant Professor of Nursing, School of Nursing and Health Professions

University of San Francisco

San Francisco, CA

Joan Smith, PhD, RN, NNP-BC

Associate Professor, Goldfarb School of Nursing at Barnes-Jewish College

Advanced Practice Clinical Scientist, St. Louis Children’s Hospital

St. Louis, MO

Keira Sorrells

Founder and Executive Director

Zoe Rose Memorial Foundation and Preemie Parent Alliance

Jackson, MS

Sharon Sprinkle, RN, MBA, MHA

Nurse Consultant Manager

Nurse-Family Partnership

Denver, CO

Zina Steinberg, EdD

Assistant Clinical Professor of Medical Psychology

Columbia University

New York Presbyterian Morgan Stanley Children’s Hospital

New York, NY

Alison Stuebe, MD

Assistant Professor of Obstetrics and Gynecology, Division of Maternal Fetal Medicine

University of North Carolina

Chapel Hill, NC

Sarah Verbiest DrPH, MSW, MPH

Executive Director

University of North Carolina Center for Maternal and Infant Health

Chapel Hill, NC

Eleanor Yost, MBA-HA, MSN, PNP

Director of Program Innovations

Nurse Family Partnership

Denver, CO

Paula Zeanah, PhD, MSN

Picard-Nursing Collaborative Chair

Director of Research

Cecil Picard Center for Child Development and College of Nursing and Allied Sciences

University of Louisiana, Lafayette, LA


Professional Organizations that Participated in the Workgroup

We are grateful for the contributions of our colleagues to this important effort. Without the tireless work and advocacy efforts of these groups – and the members who sustain them – family-centered NICU care would not exist.

Academy of Neonatal Nursing

Association of Women’s Health, Obstetric and Neonatal Nurses

Council of International Neonatal Nurses

Healthy Mothers, Healthy Babies Coalition, National Premature Infant Health Coalition

March of Dimes

National Association of Neonatal Nurses

National Association of Neonatal Therapists

National Association of Pediatric Nurse Practitioners

National Association of Perinatal Social Workers

National Perinatal Association

Nurse Family Partnership

Oklahoma Infant Alliance

Preeclampsia Foundation

Special Care/Special Kids

Transcultural Nursing Association

100px NICU heart

Parent Support Organizations that Participated in the Workgroup

Parents and families are at the heart of everything we do. The leaders and members of these organizations prove that, when given support, parents can not only be powerful advocates for their babies – but for each other. These groups exemplify the strength and resilience of NICU families.

Eden’s Garden

Family Advocacy Network (NPA)

Graham’s Foundation

Hand to Hold

NICU Helping Hands

NICU Parent Support (NICUPS) at Mercy Hospital in St. Louis

Parent to Parent of Salt Lake City

Preemie Parent Alliance

Zoe Rose Memorial Foundation